Date 13 March 2010 health Author by Raw Juice Girl Comments 26 Comments

Note: There is SO much to my health history and story in general, it was especially difficult to focus this post on only RA and Fibromyalgia. I hope I’ve managed to successfully share this with you, though – and not just ramble. ;-)

I recently mentioned that I was going to share more information on living with Fibromyalgia and Rheumatoid Arthritis, so here it is…

I was diagnosed with both Rheumatoid Arthritis and Fibromyalgia in my mid-twenties. (I was also diagnosed with debilitating migraines, depression, PCOS/Polycystic Ovary Syndrome, and endured other grueling health issues (like Candida and colon problems) but in order to keep to a bit of sense to this post, I’m sticking to the RA and Fibromyalgia today.)

This came after barely escaping domestic violence and enduring countless tests, doctors visits, and excruciating pain.

I’ve never shared to the full extent of just how horrific that time in my life was. I do plan on sharing everything in a book someday.

When I was diagnosed, I couldn’t believe it. Arthritis AND Fibromyalgia? But I was so young?! How could it be???

Western medicine, Rheumatoid Arthrits, Fibromyalgia, natural medicine

(Source)

Of course, it all made sense: the chronic (and never-ending) muscle spasms, sharp pain, awkwardness with trying to use my hands to do simple tasks (like hold a drinking glass!) and much more.

My hand-eye coordination was the pits – basically non-existent. When I was able to walk, I had to drag my right leg – my hip just wouldn’t cooperate. Things got so bad, I began to lose the ability to move easily. I could no longer hold a drinking glass, write with a pen, or fold laundry – and I woke up one morning and simply couldn’t get out of bed; couldn’t move; couldn’t roll over. Nothing. I became bedridden.

If my mom hadn’t nursed me during that time (brought me meals, drinks, helped bathe me, helped me to the bathroom – everything) I’d have ended up living in a nursing home. I’m not even kidding, people. Not even.

I had so many health issues in my mid-twenties that some doctors I went to literally thought I might not make it to see the age of 30. One doctor told me to my face: If you don’t do something – and quickly – you’re going to die.

At that point, I was right at 300 pounds with horrific levels: blood pressure, blood sugar, hormones, cholesterol – the works.

Now, I know some of you may think I ate myself into a Bolivian because of depression/stress brought on by barely escaping domestic violence – but that isn’t true. While I wasn’t eating tons of fresh raw veggies during that time (it was very hard times and there were lots of meals that consisted of packaged noodles, if ya know what I mean ;-) ) most of the weight gain was due to my lack of mobility, side effects from prescription medications and shots, and also stress.

Die? Going to die? In my 20s? AFTER escaping domestic violence? How could it be?

I was scared, folks. Really, really scared. I cried. I was angry. I couldn’t believe that God would spare my life from the nightmare of my abuser – only to let me die from the after-effects of stress, obesity, and all that came with it.

I couldn’t accept it. I didn’t want to die. I had come too far. Way too far.

I wouldn’t give up!

Things are MUCH better now, but I still have bad days and painful times.

For example, there are days I have tried to spend a lot of time in the garden or have done too much sweeping/mopping/walking, etc., and have ended up rotating an ice pack on different parts of my back and am literally in tears because the pain is so bad.

Hope

I finally realized that if I didn’t get my mind above the condition my body was in, I wasn’t going to make it – I was caving. I was giving in to the symptoms, the pain, the depression. No, my future didn’t look positive. No, I didn’t feel good. I hurt. I ached. I didn’t sleep. I cried. Some days I wanted to die. It was that bad. Other days I was afraid I would die. And I didn’t want to.

Mind over matter tips that inspired me to keep going:

  • I wrote positive thoughts in notebooks, journals, or on loose scraps of paper.
  • I eliminated toxic people from my life.
  • I hung on to every word of positive quotes and encouraging Bible verses.
  • And most importantly, I prayed – and believed – with all my heart.

The verse that especially pulled me through and still has a most special place in my heart, is Proverbs 17:22 (KJV)

A merry heart doeth good like a medicine: but a broken spirit drieth the bones.

I had to find joy in my situation. Yes, I was in agonizing pain – but I was ALIVE! I had survived domestic violence and I didn’t live through it only to whither away from illness and negativity.

When I did focus my mind on the positive, my life began to change. Yes, it was an uphill battle all the way. It still is. I can’t eat like other people, or I literally feel the pain of increased inflammation. And when I do fall off the wagon and “cheat” on foods I know my body can’t process, I pay for it with pain and feeling blech.

What I physically changed in order for the symptoms to fade dramatically:

  • quit drinking soda
  • cut out all white sugar, flour, and processed foods
  • ate fruit sparingly, stuck mostly to berries
  • added a TON of fresh, raw veggies
  • started drinking raw juices and juice fasting
  • started taking herbal supplements
  • started drinking herbal tea
  • began cleansing my entire body – especially my colon
  • started drinking apple cider vinegar (with Mother/living enzymes) every single day
  • started drinking tart cherry concentrate every single day, up to 3 x a day
  • started taking probiotics daily
  • and more

berries

(Source)

What I physically do to maintain the decreased symptoms now:

  • eat a high-raw (mostly vegan) diet
  • drink raw juices and smoothies
  • eat minimal fruit
  • yoga
  • drink herbal teas
  • take herbal remedies
  • continue to cleanse my body/colon as I feel the need
  • take apple cider vinegar with Mother daily
  • take tart cherry concentrate daily
  • drink lots of water
  • avoid soy
  • avoid agave (post coming next to explain this)
  • use stevia as a sweetener
  • walk
  • try to get enough sleep
  • blog (because it brings great joy to my life, it seems to help my health overall) ;-)
  • consume healthy fats and oils
  • try to start every day by drinking warm lemon water on an empty stomach
  • still take probiotics often

Natural vs Western

I mostly manage my pain with my high-raw (mostly vegan) diet, herbal tonics, apple cider vinegar with Mother, tart cherry concentrate, and yoga but there have been times I simply cannot tolerate the pain and I will (reluctantly) take an Ibuprofen or similar over-the-counter pill. I try not to, though. I personally gave up on Western medicine because I tried so many different pills and shots, I got tired of the side effects. It just wasn’t worth it to me.

I don’t judge people who go the Western medicine route, though, because I know what it’s like to suffer with horrible health issues and we all have to listen to our bodies, make the best choice we can at any given time, and be kind not only to ourselves, but to others. I’m a firm believer in the fact that we don’t know what someone else is going through unless we’ve walked a mile in their shoes – and even then, we all react differently.

Root Cause/Cure

Some of you wanted me to share my opinions on the root cause of RA/Fibromyalgia and a cure. And that’s exactly what this is: my OPINION. That’s it.

So, here goes…

I personally believe that the root cause is inflammation. I believe processed foods, sugar, antibiotics, yeast, etc., contributes to out-of-control inflammation. I know immediately how much – or little – inflammation is raging in my body at any given time. I’ve learned to listen to my body and because of that, and my high-raw (mostly vegan) diet, I can manage my symptoms so well that it’s ALMOST like it is cured.

And when I’m juice fasting, I feel SO light – and I don’t mean weight; I mean inflammation. Make sense?

The Happy “Ending”

It seems silly to think of my current status as a “happy ending” because I feel my life is only beginning! I’ll be 35 this summer and just thinking of that is a breath of fresh air. I’ve lost over 100 pounds and gone are the days of not being able to hold a drinking glass – I can now type, write with a pen, and even thread a needle!!!

From this

(And this wasn’t even my heaviest!)

Michele's Before

To this

weight-loss-after-photo4

And never in a million years did I EVER think I’d be sharing such inspiration and encouragement from this side of the screen because I remember countless times searching online (with tear-filled eyes) for any ounce of hope that my health might improve – that’s how I was led to juice fasting, and what prompted me to start this blog. ;-)

Do you suffer with RA or Fibromyalgia? How do you manage your symptoms? Do you just go the Western medical route? If so, do you supplement prescription meds with alternative remedies, a balanced diet, herbal teas, cleansing? Do you only seek natural methods for healing? Do you find relief in exercise – like walking, running, yoga, swimming, etc.? Can you relate to my experiences of battling illness at such a young age? And if you’re suffering tremendously right now and feel there is no hope of getting better, has my story encouraged you to keep trying different things, and to keep fighting no matter what? Did I leave anything out? Share your stories, tips, thoughts, opinions, pain, triumphs, and let’s glean from one another!

The sky is the limit!

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26 Comments - Give me your juicy opinion, please. I can't wait to read it!

  • 1
    bitt said:

    thank you so much for sharing! i too have gotten into raw foods for health reasons, back pain and chronic fatigue. (some docs have said fibromyalgia but it’s not clear cut). I find that cooked foods cause inflammation in me as well, i notice it mostly through my pain level. i’m so lucky to have found raw foods and even though i am not 100% well yet i know i am on the road to better health.

    answers to questions:
    Do you just go the Western medical route?
    sometimes although i am fasing off of it. i do find that i need some medication at this point.

    If so, do you supplement prescription meds with alternative remedies, a balanced diet, herbal teas, cleansing?
    i do acupuncture and herbal and chinese herbs.

    Do you only seek natural methods for healing?
    i use a combination but heavy on the natural side.

    Do you find relief in exercise – like walking, running, yoga, swimming, etc.?
    not always right away but i feels stronger when i do it. and i connect with the world and nature. i do have aches and pains though from it.

    Can you relate to my experiences of battling illness at such a young age?
    yes. it’s tough to be young and reorganize your whole life because of it. i have had to give up a lot but i have also learned alot.

    i appreciate your positive attitude! i find this helps me a lot too although it took me awhile to get there.

    HUGS.
    bitt´s last blog ..WINNER: 5" ceramic kitchen knife My ComLuv Profile

    [Reply]

    Raw Juice Girl Reply:

    You’re welcome, Bitt! :-D

    Yes, raw foods have been SUCH a blessing in my life. It’s amazing how much better I feel when I eat all raw or high raw and how bad I feel when I eat overly processed food – or too much cooked food (even if it isn’t that often!). Crazyness…

    Thanks for sharing what you’ve been doing with Western medicine and that you’re mostly using natural methods. I’ve never tried acupuncture but I wish I could. I DO believe that it works and have heard great things about it!

    Oh yes, I know what you mean about the pain. Sometimes I even overdo it on yoga or walking and have to deal with aches and pains from that but I just try to feel my way through and try again.

    yes. it’s tough to be young and reorganize your whole life because of it. i have had to give up a lot but i have also learned alot. <— Very well said, Bitt. Very well said. I completely relate!

    Aw! I'm so glad you appreciate my positive attitude. It isn't always easy and I've had dark days but I always find if I stay focused on anything positive, not only do I feel better mentally and emotionally – but physically as well. :-D

    Hugs to you, too!!!

    [Reply]

  • 2
    Earth Mother – In The Raw said:

    Such an inspiration and a blessing you are, Michele. You’re a radiant beacon of hope to many, I’m quite certain. I suspect your “happy ending” is really just the beginning.

    I recently shared my owns thoughts around allopathic medicine and my journey into natural healing HERE.
    Earth Mother – In The Raw´s last blog ..Loving Our Bodies… At Any Size My ComLuv Profile

    [Reply]

    Raw Juice Girl Reply:

    Thanks so much, Earth Mother! I’m honored that you feel this way. And, yes, it’s just the beginning! I know even better days are ahead – but I already have SO much to be thankful for! :-D

    I’m on my way to check out your post now….

    [Reply]

  • 3
    Cindy said:

    I am really glad you shared this. Fibromayalgia (sp sorry) is such an illusive condition. I have personally known 3 people that have “had it” and one for sure was just “pretending’ and after that experience I have a jade whenever I hear the word.

    I know what you went thru had to be simply awful, another friend had it and described it to a T what you went thru. I don’t know how she dealt with it, whether traditional medicine played a part or not, but I sympathize with you so much.

    however I do believe we go thru things for a reason and your positivity and sharing means you have turned it into a gem and I am so proud of you!

    I guess, really, life is a fight. it doesn’t seem fair some days but at my worst, when my life couldn’t get any worse I would come across someone who made me THANKFUL that I was given what I was and not them.

    you’re a tough cookie Michele and a blessing to the blogoshpere and your loved ones as well!

    I am looking forward to reading about t

    the agave effects to this all!

    xoxoxo
    Cindy´s last blog ..Back to Human-Ville My ComLuv Profile

    [Reply]

    Raw Juice Girl Reply:

    Hey, C!

    Yes, some people do hide behind “illness” but these two really do exist. And I know it seems like there’s SO much to my health history and SO many different issues, but I think one think spiraled into another and with stress, weight gain, not sleeping, not being able to move, etc., one thing led to another and my body was just giving out on me.

    I appreciate your sympathy. ;-)

    Yes, life is a fight – whether you’re dealing with health issues, or not.

    I know exactly what you mean. Even when I was at my sickest, I’d look around and see people who were blind or didn’t have their legs or couldn’t hear or were homeless and it reinforced the fact that I really needed to count my blessings and not focus on the negative. I am so blessed.

    Thanks, C, for your kind words. I’m honored to be a blessing to the blogosphere! :-D

    I’ll try to post the agave info next (and soon) – I’ve made y’all wait long enough! Sorry about that….

    Hugs,
    M

    [Reply]

  • 4
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  • 5
    Averie (LoveVeggiesAndYoga) said:

    Michele, this post is my fave ever that you have done b/c it reveals such an intensely personal side to you, AND it gives the real, tangible steps and things you took and did in order to get yourself healthy again…bravo! I mean, you literallly saved your own life and reading your story was so awesome. I knew much of it already but it was nice to connect the dots.

    I have tons of issues as we have discussed privately for which high raw vegan diet has helped immensely. It’s not perfect, but it works. And I am a huge believe in all things non-western, yoga, acupuncture, herbs, mind over matter, the whole bit. We are kindred spirits on all that jazz :)

    ANyway hon, yes, amazing post, awe-inspiring journey back into health. And yes, write that book.
    xoxo
    p.s. just started a raw foods cookbook give away!
    xoxo
    Averie (LoveVeggiesAndYoga)´s last blog ..Give Away: Raw Vegan Cook Book of Your Choice!!!!!!! My ComLuv Profile

    [Reply]

    Raw Juice Girl Reply:

    Your favorite, Averie? Wow. I’m honored! :-D

    Yay! I’m glad you were able to connect the dots. I still left so much out, though. There’s just so much that went on and that’s why I’ve always wanted to write a book about it.

    Yes, I know. And I totally believe in the raw lifestyle – it’s done so much for me. And even though I’m not 100% vegan, I still notice a HUGE difference from eating mostly vegan.

    Kindred spirits? Absolutely! :-D

    Thanks for your kind words. I’m honored that you enjoyed reading about my journey.

    Got my entries in for that contest! ;-)

    Hugs,
    Michele

    [Reply]

  • 6
    La said:

    Wow Michele – I hopped on over here after seeing your comments on my blog and I’m so glad you stopped in to say hi. I didn’t expect to be greeted with such a personal and inspirational post! I am absolutely astounded by your story – your courage and strength truly shine through – it’s amazing to me the steps you have taken towards naturally healing your life, and everything you have done makes perfect sense to me. I haven’t dealt with RA or fibromyalgia but I am a sufferer of lifelong depression and now I attribute it at least 85% to my diet. In the past few months, I’ve significantly reduced my sugar intake and upped my veggie intake and I am astounded at the changes in my body and in my mood. I really feel like I have been tracing the steps of life but I haven’t really been LIVING up til now. Your story is one more inspiring message on my way to higher raw living. Thank you so much for sharing this.
    La´s last blog ..What does $11 look like? My ComLuv Profile

    [Reply]

    Raw Juice Girl Reply:

    Hi, La!

    Thank you so much! I appreciate your kind words and am so glad my story blessed you.

    Oh, I also noticed a HUGE improvement in depression symptoms once I changed my eating/drinking habits.

    And I know exactly what you mean about LIVING now – it’s such a difference, isn’t it?! :-D

    You’re most welcome. And thanks for sharing your experience too, La!

    Hugs,
    Michele

    [Reply]

  • 7
    TRACKBACK: Strawberry Serenity: Synergy Organic, Raw Kombucha Tea Review » Blog Archive » Healing with (Raw) Juices By Michele L. Tune
  • 8
    George Angus said:

    As I’ve said, yours is a truly remarkable story. I hope the impact on others is far reaching.

    I look forward to seeing your book someday Michele.

    George
    George Angus´s last blog ..Flash Fiction: Night Stocker My ComLuv Profile

    [Reply]

    Raw Juice Girl Reply:

    Thanks, George! Your support and encouraging words mean a lot to me. :-D

    And that book is coming some day. In time, it’s coming….

    *smiles*
    Michele

    [Reply]

  • 9
    Tamara Holmes said:

    I soooo much can understand what you have gone through. I started having back pain when I was only 16 yrs old. CFS by 26, severe pain & surgeries on neck at 35, now severe chronic all-over pain & other misc stuff at 45. However, like you, I have also started going the alternative & natural way. I’m just juicing for now, no raw foods except for fruits & vegetables (oh & chia seeds). I have had a lot of success with juicing. Add to that my success with energy work & meridian tapping like Healing Codes, Emotion Code, EFT, and TAT, and I have been feeling so much better. I have been cutting back on my prescription pain meds for 4 straight months now (after 7 yrs)! Woo Hoo! I hope to have a wonderful success story like you one day. Congratulations on making wonderful choices and changes in your life. You look great. Thank you for being an inspiration to us all!
    Tamara Holmes´s last blog ..Do the benefits of carrot juice outweigh the negatives? My ComLuv Profile

    [Reply]

  • 10
    TRACKBACK: Nuttzo + Apple Slices + Berry Blackstrap Smoothie = Delicious Lunch! » Blog Archive » Healing with (Raw) Juices By Michele L. Tune
  • 11
    TRACKBACK: Agave: Why I Was Hesitant to Use It, And Won’t Be Using It Anymore » Blog Archive » Healing with (Raw) Juices By Michele L. Tune
  • 12
    Carbzilla said:

    “A merry heart doeth good like a medicine: but a broken spirit drieth the bones.” That is an amazing quote! Explains why my mother has osteoporosis!

    I was afraid I had RA but the rheumatologist said it was probably Fibro and then said “But I’m more concerned about your hypermobility.” I was around 35 years old, and I asked him “What are you talking about???” No one in my whole life had ever noticed/mentioned/cared that I had hypermobility and that I should be aware of it. Crazy! Not like it’s deadly but there are certain ways of working with your body that people who are hypermobile should be aware of.

    I know I could feel better than I do right now but I’m picking my battles. Continue to take good care of yourself – you’re such a motivation to others (as I have shared with you many times).

    {{hugs}}
    Carbzilla´s last blog ..Jay Robb giveaway! My ComLuv Profile

    [Reply]

  • 13
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  • 14
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  • 15
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  • 16
    TRACKBACK: Jalapeño Hummus Recipe » Blog Archive » Healing with (Raw) Juices By Michele L. Tune
  • 17
    Annie said:

    Wow, more power to you!!! I am a student of acupuncture and oriental medicine and I am always counseling my patients at the school clinic on inflammation and foods to stay away from and foods to incorporate.
    I believe also that all auto-immune diseases begin with inflammation.
    You are very inspiring and empowering and I am sure your story has inspired thousands of people!
    Annie

    [Reply]

    Raw Juice Girl Reply:

    Thank you so much, Annie!

    Yes, I believe all disease – and cancer – begins with inflammation. That, and a dirty body/colon overall.

    It’s taken years to get to the point I am, and even now I’m continually in maintenance mode and have to be careful what I eat.

    Thanks for your encouraging comment!!

    Hugs,
    Michele

    [Reply]

  • 18
    TRACKBACK: Sun-Dried Tomato Hummus Recipe + Jamie Oliver’s Food Revolution » Blog Archive » Healing with (Raw) Juices By Michele L. Tune
  • 19
    A.Bevers said:

    I really wanted to say how nice it is to hear someone else’s story! I can relate to you on a lot of levels. I was diagnosed with Fibro in2006. Just when I thought I had mastered dealing with one chronic pain disease and how it remarkably changed my life …..BAM!!….I was then diagnosed with RA almost a month ago! AN ADDITIONAL CHRONIC PAIN DIAGNOSIS…..!!!!

    I can relate to (wont get into detail here) having multiple other medical diagnoses which have also affected my ability to function like I used to. Some more recent problems too, that they just haven’t figured out yet….some with serious, troubling neurological symptoms…..the later here just adds even more overwhelming stress…fear of the unknown, for example….ya know.

    We share so many of the same coping skills and faith. We also share the plan of writing/publishing a book in the future. I’ve got about 10,000 pgs of useful journal writing I plan to draw from so far.

    Thank you again for sharing your story and for listening to mine :-)

    Take care!!
    ~Angela

    [Reply]

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